Important Message from our Federal Advocacy Team...

Act Now to Eliminate Lifetime and Annual Caps in the Final Health Reform Bill!

We need you to call or email your Senators and Representatives TODAY to ask them to support the strongest possible provisions related to lifetime and annual caps in the final health reform bill. Please ask your Representative and Senators to contact House Speaker Nancy Pelosi and Senate Majority Leader Harry Reid to support the House bill's provisions related to lifetime and annual caps, which would eliminate both in all insurance plans.

For the Senate: Please ask your Senators to sign Senator Byron Dorgan's (D-ND) "Dear Colleague" letter to Majority Leader Reid and Speaker Pelosi, which urges the inclusion of the House lifetime caps language in the final health reform bill.

For the House: Please ask your Representative to sign a "Dear Colleague" letter being circulated by Representatives Patrick Kennedy (D-RI) and Cathy McMorris Rodgers (R-WA). The letter to Majority Leader Reid and Speaker Pelosi urges the inclusion of the House lifetime and annual caps language in the final health reform bill.

Please call and email your Senators and Representatives TODAY. You can reach the Capitol switchboard at: 866.220.0044. All you have to do is tell the operator where you live and you will be connected you with your Senators' and Representative's offices. You can use the draft e-mail below to write to them as well. You can find out who your Representative is here.

If you do not know the health staff person in your Senators' and Representative's offices, please contact us directly for a spreadsheet with the contact information.

More information on the House and Senate health reform bills is available on the NHF health care reform.


Or, contact Johanna Gray, NHF's Washington Representative, at johanna.gray@hklaw.com or 202-419-2509.


Apply for an Internship with Bayer HealthCare Pharmaceuticals

The Bayer Hemophilia Leadership Development Program was developed with input from several members of the hemophilia community who saw a need for a program to develop future leaders in the bleeding disorders community.

With their support, Bayer HealthCare Pharmaceuticals created an eight-week, paid summer internship at Bayer HealthCare's U.S. Headquarters in Wayne, New Jersey.

Apply here!


NC-HS Announces New Website!

National Cornerstone Healthcare Systems, long a leader in providing friendly, professional, family-oriented home care for those with hemophilia and other blood-related disorders, is proud to announce their brand new website.

A total revamping of their former website, the new site, still at www.nc-hs.com, is the center for all things National Cornerstone. A one-stop resource for everything you need to know, not only about the company, but about hemophilia and other blood related disorders.

A complete library section gives you access to a world of information, right at your fingertips. Social sections allow you to interact and share stories with others. You'll have a compete section on all the National Cornerstone affiliates, so you'll be able to quickly and convieniently locate the closest provider to you!

The younger ones are not left out either! There's a kids section, complete with jokes, riddles, trivia, and games for them.

Whether you're a hemophilia patient, or the family of one, the new website has something for you!